Duchenne Parent Organizations around the globe collaborate through the World Duchenne Organization. Activities include the World Duchenne Awareness Day on September 7th and the promotion of good Standards of Care for everybody affected by Duchenne Muscular Dystrophy. This project is a contribution of the Dutch organisation to the global community.


Project Managers:

Mirjam Franken
Suzie-Ann Bakker

The videos on this website were commissioned by Parent Project Productions and made possible as a result of receiving a STRIVE award 2015.


The videos and this website were designed and produced by


Special thanks to Kathi Kinnett, PPMD, for her dedication to bring information about Standards of Care to the DMD families worldwide.

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